Quality of life of the family of a child with psychomotor disability in the context of solving everyday problems

Krzysztof Czupryna, Olga Nowotny-Czupryna, Joanna Szymańska, Renata Szczepaniak

K. Czupryna, O. Nowotny-Czupryna, J. Szymańska, R. Szczepaniak – Quality of life of the family of a child with psychomotor disability in the context of solving everyday problems. Fizjoterapia Polska 2019; 19(3); 54-61

Abstract
There is a strong relation between the type and severity of the disease/disability, the effects of treatment and/or improvement on one hand, and the quality of life on the other. In the case of a disabled child, this relation also includes members of the family. The criterion of a reduced quality of family life is the limitation of its participation in social life assessed in the area of 6 aspects, i.e.: communication, interpersonal relations with the child, mobility, self-care, domes-tic life and social life. The aim of the work is to present everyday problems in the area of the above mentioned aspects of a family with a disabled child in connection with the necessity to acquire new competences by its members.

Key words:
quality of life, disability, limitations of family in social life

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Assessment suitability of the home rehabilitation for increasing the physical and psychological ability of disabled people

Michalina Musiałek, Dariusz Białoszewski, Maciej Janiszewski, Aleksandra Maciąg, Mirosław Dłużniewski

M. Musiałek, D. Białoszewski, M. Janiszewski, A. Maciąg, M. Dłużniewski – Ocena przydatności rehabilitacji domowej w podnoszeniu sprawności fizycznej i psychospołecznej osób niepełnosprawnych. FP 2013; 13(3); 34-40

Abstract
lntroduction: Home rehabilitation is a service provided within the healthcare system. For handicapped people it is typically the only one option to maintain their physical ability of the highest reachable level. Goal of this paper was to analyze, whether home rehabilitation brings benefits to the physical and psychosocial ability of the handicapped people, or not.
Materials and methods: 50 handicapped patients in age between 31 to 89, covered with the home rehabilitation programme, were invited to a survey condition of patients before the beginning of the rehabilitation programme — 1st Part of the survey, and after a half-year period of the rehabilitation — the 2nd Part was assessed. The questions concerned individual experience of patients relating to their physical and psychosocial condition, locomotion, routine activities, falls and ailments. Then the differences in the answers in both parts of the survey were analyzed in order to verify the rehabilitation effects. ln summing The results up, statistical methods available in the Statistica 9PL software were used. Results: Comparative analysis of the surveys, using basic statistics and Wilcoxon signed-rank test showed, among other things, an improvement in physical condition (p<0.05) and psychical condition (p< 0.05), an improvement in locomotion (p<0.07), in ability to leave home (p<0.05) and reduced fear of falling (p<0.05). 96% of The interviewees saw health benefits from the home rehabilitation. Conclusions: 1. The home rehabilitation brings advantages in terms of physical and psychosocial ability. 2. lt is especially important to the handicapped “bedridden” people and to people, who are not able to perform their routine, personal activites and their social roles by themselves.

Keywords:
disability, home rehabilitation, life quality

 

 

How to Help Persons with Disabilities to Improve Their Everyday Life? – Report from Study with the Rational Behavior Therapy Application

Aleksandra Sierant, Monika Łętocha, Paweł Grzybek, Kamila Pytowska, Anna Wiśniewska-Małek, Marek Kiljański, Wojciech Kiebzak

A. Sierant, M. Łętocha, P. Grzybek, K. Pytowska, A. Wiśniewska-Małek, M. Kiljański, W. Kiebzak – How to Help Persons with Disabilities to Improve Their Everyday Life? – Report from Study with the Rational Behavior Therapy Application. FP 2016;16(4);40-46

Abstract

Introduction. People with disabilities face in their everyday life many challenges / difficult experiences / incidents of stress. Disability status is often accompanied by the lack of employment and by social isolation, moreover, the architectural barriers significantly hamper the lives of the people with disabilities, and reduce the life’s quality. Disabled persons are particularly vulnerable to depression and to suicidal thoughts, and therefore a_special care should be devoted to them. Thus, there is the need to establish methods and support system, which would be effective in the therapeutic work with this group of persons. Proven effectiveness in the treatment of critical situations, including the mental disorders, as well as coping with the everyday life stress, have the cognitive-behavioral methods.  The Rational Behavior Therapy is a_cognitive-behavioral method of therapy developed by Professor Maxie Maulsby  for patients with mental disorders and those, who have experienced crisis situations.  The aim of this method is to reformulate a_person’s thinking to more adaptive model, which should result in reduction in severity of the negative emotions and the undesirable behavior.
Aim. The aim of this study is to evaluate the RBT method, while working with disabled persons.
Materials and Methods. In the study participated 13 persons with disabilities, belonging to professionally active age group – 30 to 52 years old, with mean age of 41 years, and standard deviation of 6.13. Using a_distress thermometer, we measured stress level and the dispositional optimism, before and after two days of the RBT workshops. During workshops, the persons received useful information about mechanism in which emotions function, and about methods for coping with stress, and then, they performed exercises under the supervision of experienced therapists, and the whole session has been complemented by the presentation of films, illustrating the introduced materials.
Results. A_significant reduction in the average level of stress has been determined, from 7.54 before the RBT workshops, to 2.62 after the workshops. The average incidence rate of all tested problems (practical, family, emotional, physical) has been reduced. After application of the therapy, a_significant increase in the level of optimism has been noted.
Conclusion. The obtained results confirm the initial usefulness of the RBT method, in assisting the people with disabilities. There are, however, further multicenter longitudinal studies required, which would confirm the effectiveness of such intervention.

Keywords:

Stress, cognitive-behavioral therapy, RBT, disability, emotional problems, cognitive restructuring

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