Objective quality of life and level of life satisfaction in people suffering from multiple sclerosis

Tomasz Tasiemski, Magdalena Koper, Monika Miler

Tomasz Tasiemski, Magdalena Koper, Monika Miler – Objective quality of life and level of life satisfaction in people suffering from multiple sclerosis. Fizjoterapia Polska 2011; 11(3); 199-212

Abstract
The chronic nature of the disease, accompanying numerous ailments and unpredictable pace of dete­rioration in the patient’s condition adversely affect the quality of life in patients with multiple sclerosis (MS). To make a full and reliable assessment of the quality of life of patients with MS, both the objective and subjective measurements should be taken into account.The study included 30 people with MS and 60 healthy individuals (OZ). Objective quality of life was analyzed on the basis of four indicators: education, employment, income, leisure activities. To assess the subjective quality of life the Life Satisfaction Questionnaire was used. In case of objective determinants of quality of life significant differences between groups were reported in terms of employment, income and certain leisure activities (reading books, travelling). People with MS assessed their overall life situation similarly to healthy controls (HC), i.e. as rather satisfactory. For people with MS the most satisfying were relationships with their partners and family life, and for HCs – self care ability. Both MS patients and HCs were the least satisfied with financial and occupational status. MS patients are rather satisfied with life as a whole, probably due to the satisfaction with leisure activities. In addition, they declare significantly lower employment rate and income as compared to HCs, which confirms a very difficult financial situation of MS patients in Poland.
Key words:
Multiple Sclerosis, objective quality of life, life satisfaction
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Assessment of knowledge of the health status of patients with spinal cord injuries among physiotherapists from public health institutions in Wielkopolska region

Tomasz Tasiemski

T. Tasiemski – Assessment of knowledge of the health status of patients with spinal cord injuries among physiotherapists from public health institutions in Wielkopolska region. FP 2012; 12(4); 305-312

Abstract

Background. Spinal cord injury (SCI) results in functional disorders of multiple systems of the human body and brings about a number of post-traumatic complications. The patients should be informed about the health status after SCI already during their stay in hospital or rehabilitation centre. The main objective of this study was to assess the level of physiothe – rapists knowledge of about the health status of SCI patients.
Material and methods. The study involved 55 physiotherapists (35 women and 20 men) employed in 12 public health institutions in Wielkopolska region. The average number of years worked as a physiotherapist was 9 in the studied sample. The research tools used for this study included the knowledge test checking the participants’ knowledge about the health of SCI patients and a personal questionnaire.
Results. The general level of knowledge about the health of SCI patients among the physiotherapists has been assessed as satisfactory, the highest in the area of nutrition/diet and thrombosis, and the lowest as regards obtaining assistance after SCI. The type of school completed did not affect the subjects’ knowledge of the health status of SCI patients. A significant negative correlation between the level of knowledge and years of physiotherapists working in the profession was revealed.
Conclusions. The graduates of physiotherapy studies or colleges, especially those with long work experience, should be aware of the necessity of lifelong learning and regularly renew their professional knowledge, in this case by tracing the latest information on the health and daily functioning of SCI patients.

Słowo kluczowe

knowledge on the health status after SCI, physiotherapists, public health
institutions

Analiza wybranych czynników determinujących wiedzę o stanie zdrowia osób po urazie rdzenia kręgowego

Jarosław Pokaczajło, Tomasz Tasiemski

J. Pokaczajło, T. Tasiemski – Analysis of selected determinants of knowledge about the health in persons with spinal cord injury. FP 2016; 16(3); 106-116

Streszczenie
Cel pracy. Głównym celem pracy była analiza wybranych czynników determinujących poziom wiedzy na temat stanu zdrowia osób po urazach rdzenia kręgowego (URK). Wybrane zmienne podzielono na dwie grupy: 1) socjodemograficzne: wiek w dniu badania, płeć, stan cywilny, poziom wykształcenia, miejsce zamieszkania oraz 2) związane z URK: wiek w dniu urazu, czas od urazu, udział w obozach Aktywnej Rehabilitacji (AR), obraz kliniczny, tj. paraplegia/tetraplegia.
Materiał i metodyka. Badaniami objęto 100 osób po URK (22 kobiety oraz 78 mężczyzn) uzależnionych w codziennym funkcjonowaniu od wózka inwalidzkiego. Narzędziem wykorzystanym do przeprowadzenia badań był test wiedzy na temat stanu zdrowia osób po URK.
Wyniki. Średni wynik uzyskany przez respondentów w teście wiedzy wyniósł 27,11 pkt. (zakres:10-45 pkt.), co wskazuje na dostateczną znajomość stanu zdrowia osób po URK. Najlepszą wiedzę badani wykazali w zakresie odżywiania/diety. Obszarami, na temat których posiadali najmniejsza wiedzę było uzyskiwanie pomocy oraz zaopatrzenie ortopedyczne. Do czynników istotnie różnicujących poziom wiedzy na temat stanu zdrowia osób po URK należały: udział w obozach AR, wiek w dniu urazu oraz czas od urazu.
Wnioski. Dostateczna ogólna ocena wiedzy oraz niedostateczne wyniki w obrębie poszczególnych obszarów funkcjonowania osób po URK wskazały zagadnienia, którym w trakcie procesu rehabilitacji i edukacji pacjentów należy poświęcić szczególną uwagę.

Słowa kluczowe:
wiedza, uraz rdzenia kręgowego, edukacja, rehabilitacja

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